Tuesday, September 16, 2008

Why Our Babies Are Still Dying of Sudden Infant Death Syndrome


Margaret Renkl weighs through the current research and simplifies the scientific terms to tell families what is known and what still needs to be learned about this rare medical mystery called Sudden Infant Death Syndrome (SIDS). CNN

Despite success at reducing SIDS rates by over 50 percent in recent years, SIDS remains the leading cause of death for babies one month to one year old. SIDS continues to strike unexpectedly and takes families down a terrifying life-transforming journey of unthinkable grief and loss.

Many states do not provide consistent trainings about SIDS to first responders and day care workers other than the Back to Sleep program information. Nor do they offer bereavement support to SIDS families.

In 2007 Congress declared October as Pregnancy and Infant Loss Awareness Month. Many states have laws regarding Sudden Infant Death Syndrome. Our babies are still dying of SIDS because states vary in SIDS definition interpretation, coding of deaths; and the guidance or support given to coroners, medical examiners and fatality review boards. Only eleven states require special training about SIDS for child care personnel, firefighters, emergency medical technicians or law enforcement officials. These states are Arizona, California, Florida, Indiana, Minnesota, Nebraska, Tennessee, Texas, Washington, West Virginia and Wisconsin.
Our babies continue to die because national data collections for SIDS are not giving accurate results to help pin point the cause due to the variances between states.

Visit The National Conference of State Legislatures to view your state’s law on Sudden Infant Death Syndrome. Please contact your state’s legislative representative and encourage them to bring your state current with the needs of the nation by requiring special trainings about SIDS, adopting a national definition of SIDS and detailed protocol for medical coding of infant deaths, along with a provision of bereavement counseling.

To learn more about SIDS or how to reduce your baby’s risk call visit www.firstcandle.org

If you or someone you know has experienced the death of a baby to any cause, English and bilingual crisis counselors are available 24 hours a day, 7 days a week by calling First Candle at 1-800-221-7437


If you would like further information on raising SIDS awareness visit these excellent websites:

www.battleSIDS.org

www.cjsids.com

www.coloradosids.org

www.firstcandle.org

http://www.healingokhearts.org

www.iowasids.org

www.SIDSfamilies.com



Resource box: Jewel Sample is a children’s writer and award-winning author of “Flying Hugs and Kisses” books. For more information about her background and publications visit her at Jewel’s Sand Box News

3 comments:

Allyn Evans said...

Hi, Jewel!

Thanks for your contribution to this cause.

Donna McDine said...

Jewel...what valuable information you have provided. Your post has taught me that SIDS can affect babies up to a year old...I never knew that. Keep up the great work.

Warmly,
Donna McDine
www.donna-mcdine.blogspot.com

Jewel Sample said...

Thank you Ladies for stopping by. Yes, Donna Sudden Infant Death Syndrome can strike an infant up to a year old, although most cases occurr between 2-4 months of age. SIDS continues to be a medical mystery we must not let go unsolved.
In the meantime services for SIDS families must be beyond the back to sleep program brochure. To date 59 territories, jurisdictions, and states receive funding under the MCH (Maternal and Child Health) Block Grant. State and local SIDS programs typically receive funding under this grant. There is no single uniform program model for the states provision of risk reduction and bereavement support services to SIDS families. As a result services provided vary from state to state. That is why it is so important for citizens to come together and help SIDS families receive needed services.
I hope this dialoque has gotten you to talking about it with you friends and family.
Together we can make a difference for our future generations.